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Welcome to our store!

Stephanies battle with paraneoplastic

Hi there! My name is Stephanie and I was diagnosed with paraneoplastic cerebellar degeneration (say that ten times fast) in the fall of 2015. This is around the time that I connected with Amanda on Instagram, and we have compared symptoms and followed each other’s progress ever since.    At the time of my PNCD diagnosis, I was battling another serious illness: a rare blood cancer called Hodgkin’s Lymphoma. After...

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Flat and Fine With It

In September 2016, nine months after my neurological condition was diagnosed, doctors biopsied a swollen axillary lymph node that they found with a PET/CT scan. It was a small procedure where the doctor used a core needle to remove some of the suspicious tissue under local anaesthetic. A day later, my mother told me that she’d been diagnosed with breast cancer. I don’t remember how long it took to get...

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Finding a New Normal

Living with a chronic illness can be quite isolating. There seems to be a lot of judgment from “normal” people who don’t understand your chronic illness, saying you don’t “look” disabled or passing judgment when you don’t have the energy to perform seemingly simple tasks. Even members of my immediate family don’t fully understand my disease, confused by my daily symptoms and challenges.  I spent three years feeling angry and...

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